Robust information governance in S&W studies is essential because:
- Highly sensitive, personal data can be collected from S&Ws – need to protect participants and public trust
- Data flows can be complex
- Data linkage increases risk – supports secure flows and linkage
- Legal compliance is mandatory
- Underpins ethics approvals
Information governance resources
Health Research Authority
- Planning and improving research
- Approvals and amendments
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UK Policy Framework for Health and Social Care Research
Sets out the core principles for managing and conducting health research, including the responsibilities of principal investigators and other key stakeholders.
Medicines and Healthcare products Regulatory Agency
Information Commissioner's Office
- Guidance on research provisions in data protection law
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UK GDPR guidance and resources
This guidance is being updated following the Data (Use and Access) Act 2025.
- Data sharing: a code of practice
UK Research and Innovation
Legislation
Relevant legislation includes, but is not limited to: